top of page
  • Writer's pictureAmy Kathleen Lee


BTCF: Why and when did you begin your nonprofit, Dancing With ED?

AMY: The name Dancing with ED came to me in 2012 during a therapy session. We had been discussing my dance career and the doctor who diagnosed me with degenerative disc disease, three herniated disks in my lower back, and arthritis. He told me I had the spine of a 40 yr. old when I was 17 and that I would never dance again. It was one of the most painful moments of my life. It was in that session I realized, I’d never stopped dancing, I was just dancing with ED. The moment I said that, a sense of familiarity and the knowledge this name was the start of something meaningful. And not just for me. Giving back has always been part of me moving forward, so it wasn’t a surprise that I chose to start a nonprofit named Dancing with ED on June 25, 2013. I actually went to the library to borrow the book How To Start A Nonprofit For Dummies. Growing this organization is my way of giving back and having the chance to be the person I needed when I was a dancer. I want dancers to know, they don’t have to dance through this alone.

BTCF: What is Dancing With ED’s mission and goals? Where are you based?

AMY: We are based in San Luis Obispo, California, however we work with dancers all over the country through our various virtual projects and collaborations. Dancing with ED’s mission is to inspire all members of the dance community to love and care for their bodies through eating disorder awareness, outreach, and education. We include family members, teachers, studio staff, companies, dance leadership organizations under this umbrella. Our goal is to see an increase in mental health education, eating disorder resources and support, and more educational activities focused on decreasing stigma. We are building a supportive online community around eating disorders and mental health struggles, creating workshops, camps, events and other activities in hopes to be the difference we want to see in the dance community because it’s not just one person’s journey, it’s ours.

BTCF: You are very open sharing your personal story of being both an eating disorder and suicide survivor, how has that changed your life in the work you do?

AMY: The work I do has changed my life. When I started sharing my story 8 years ago, I had no idea it would bring me to this place. I never would’ve believed it if you’d told me I’d go from sitting in a psychiatric hospital in 2011, drugged up on medicine to keep me from killing myself, staring at the wall, being told I may never have an independent life, to starting a nonprofit, standing on stage speaking to hundreds of people. It’s pretty amazing what God can do. I am so open about my personal life because I have nothing to be ashamed of. You’d be surprised how many people come up to me and say, “me too’. I am ruined for all other forms of employment.

BTCF: Can you tell us more about your show, “Stages of Change: A Dancer’s Body Journey” and the impact it has made?

AMY: Most of my creative projects come from my personal journey. For example, I am currently working on healing trauma trapped in my body from childhood sexual abuse. My therapist and I are exploring how my body moves and through this process I’ve learned my body has it’s own story. Naturally, I wanted to share this with dancers – give them a chance to explore their stories using the language of dance. I thought a dance show to showcase their choreography and inspire would be an opportunity to share this with the community. It’s a chance to come together, connect, network, share resources. Celebrate our love of dance and our bodies. I found the greatest impact has been on the dancers themselves and their families. After our first show, I looked into the tear-filled eyes of a mother who said “thank you for giving my daughter the chance to do this. You have no idea what this means to us.” That’s my million-dollar paycheck, and what keeps me going when I feel discouraged.

BTCF: You’ve created this workshop, Body Talk – how did that come about, and can you please share the passion and purpose behind it all?

AMY: No one ever talked about anything when I was young. I was 13 years old, very insecure. I had no language around emotional and mental health. If I’d learned before I entered the more serious and competitive dance environments, it would have been easier. It’s really important to teach and equip young dancers the fundamentals of body image, self-talk, and identity. I use group discussions, personal sharing time and journal activities. Dancers learn key concepts to apply to body image and identity: I am more than my body, I am enough, just the way I am, I can be my body’s friend by using compassionate language and empathy, I can use self-care tools to build a healthy relationship with my body and myself. Due to COVID-19 our in-studio workshops are postponed. I am opened to trying it virtually.

BTCF: Is there a turning point in your life you can share that has created great connections with the participants in your classes? How do you think it transcends into the lives that you serve?

AMY: The greatest turning point in my life was when I survived suicide. In that dark space in my mind, where death loomed over me, I called out to God. I told him if I was going to live then I was no longer going to live half alive. It was either all in, or nothing. I made a choice that day. A choice I’ve had to fight for day after day because the mental illness in my brain will never go away. It’s me who’s getting stronger. When I tell people this, share these raw moments, people’s perspectives change. People without mental illness thank me for helping make sense of the disease so they can effectively help their loved ones. That has a ripple effect. Hope spreads.

BTCF: Your Pointing to Recovery Project is really special and you’ve made it so that others who are a part of it can participate by sharing their story in some way. How does it all work?

AMY: There is a long story behind the creation of Pointing to Recovery. Long story short, the project idea came after I’d signed the last shoe I ever wore on stage. It became my symbol of recovery. For a long time I wasn’t sure why I wrote “I chose recovery” next to my initials. It is only now, 10 years later, I realize it was the young dancer inside me, wanting people to know, she’s finally free. The purpose of this project is to give ballet dancers who may feel alone, like they are the only one struggling with an eating disorder, a sense of community. Seeing the shoes together sends a powerful message and it’s beautiful. If a dancer wants to participate, all they have to do is sign their name on a pair of pointe shoes, add a meaningful message, drawing etc. Shipping is tax-deductible. We add them to our collection, take pictures, and share them on social media. Powerful beyond words.

BTCF: There is a unique dance camp and classes you’ve created for young dancers. What is it about and how can people learn more?

AMY: We are all experiencing increased levels of stress and anxiety. Especially our children. It’s hard for us adults, but can you imagine what our kids are going through? Their lives have changed drastically. Some are no longer able to dance at the studio with their friends, perform in recitals and connect with their dance family. We want to support our most vulnerable young dancers. In response to this need, Dancing with ED teamed up with Mindfulness Coach, Dee DiGioia, founder of Mindful Kindful YOUniveristy to create Mind. Body. Heart. ? Mindfulness, Movement, and Expressive Arts camps and classes for dancers ages 6-8 and 9-12. We explore our inner world of thoughts, emotions, and attitudes for positive mental and emotional wellbeing. Mindfulness-based learning themes are woven into each class through fun and engaging activities, including community building, dance, movement, art, journaling, storytelling, and more! The embedded core competencies of emotional intelligence will empower and equip students with the knowledge, tools, and confidence to positively impact all areas of their lives. Emotional Intelligence skills are the major predictors of overall well-being, success, and happiness in life! Camps and classes resume in the fall.

BTCF: We share a mission aligned call to action and that is using art as a process of healing from eating disorders, disordered eating, and increasing positive body image relationships and improving mental health. What does that personally mean to you when you think about your life as a dancer, the trauma you have gone through and your own personal recovery?

AMY: Dance saved me in a lot of ways. Especially as a young girl having experienced trauma. I needed a place to bury my pain and just be me. It is interesting how it also contributed to my perfectionism and obsession with thinness. The ballet world is beautiful and brutal. I was obsessed with it for years. Being a ballet dancer was my identity. My eating disorder and trauma recovery taught me I am more than a dancer. I am enough, just the way I am, and I don’t have to hide anymore. I am no longer trapped. It’s ironic how the thing that I loved (ballet) trapped me, but it’s also what I used to set myself free. I use all forms of dance as a way to heal, to improve my mental health, and to feel alive.

BTCF: We are living in a time under unusual circumstances with COVID-19 and the narratives we share are so important to have gentle and a valued approach while serving those in need. How is Dancing with ED working through these times?

AMY: The past few months have been extremely difficult for me. As I am sure everyone can relate. Stress levels are high. I took that time to take care of myself and my daughter because I want to ensure I live what I promote, as much as possible. We encourage our online community to put their health and wellbeing first. We’ve continued to support, encourage and connect with dancers all over the world through social media platforms. A resource we’ve shared that’s been extremely helpful is IADMS new initiative “Helping Dancers Help Themselves” This range of programming is to offer support, information, and community to dancers, dance educators, researchers, and medical professionals during COVID-19. We are promoting self-care, mental and emotional wellness. I think people forget that COVID-19 has not only taken our loved ones, but our sense of safety, security, and hope for the future.

BTCF: The photo of Grey Matter is so powerful. Would love for you to share what is behind it all.

AMY: This piece was choreographed by Tanya Knippelmeir. It is a dark exploration into the sickness of the brain through a modern dance lens. The mind can enslave itself in repetitive negative thoughts that spiral continuously into darkness. This piece explores falling into these dark patterns, ironically designed by your own internal construct, and how we can pull ourselves out of this destruction for a better positive self. When I watched the piece for the first time, I got chills. Very powerful. We can learn so much about ourselves through choreography.

BTCF: In your show, Stages of Change: A Dancer’s Body Journey, you performed a piece where you held a scale. What was that like for you?

AMY: It was intense and life changing. The scale represented my eating disorder, and abuse from the past. This was the first time I allowed my body to move without determining its next steps. I felt naked, but not afraid. People came up to me afterward in amazement telling me how incredible it was. All I can remember is feeling happy, like my body took a huge deep breath.

BTCF: Having a young daughter, what are some of the things you share with her when it comes to self-acceptance, self-love, and positive body image relationships?

AMY: Now that she’s 13, we are able to talk more in-depth. It’s not only brought us closer but has allowed me to heal my younger self. I share that she has value, is not her body and is free to choose how she feels about herself. She has the power, not them. We talk about the reality of how difficult it is to be positive and love ourselves when all the messages around us are saying the opposite. Teaching her how to identify her feelings, and the fact that she is allowed to feel them and express them, is one of the greatest gifts I can give her. I remind her we are our strongest when we feel the weakest.

BTCF: Thank you so much for sharing with us! Is there anything else you would like to share with us?

AMY: I am growing my team of board members and volunteers!! This work is so rewarding, but it can’t live on passion alone. I am looking for creative, innovative, talented individuals, motivated by a desire to be the difference they want to see in the world. I have big plans for Dancing with ED, I just need to find the right people to come alongside me. Please spread the word!! Thank you, Breaking the Chains Foundation, for all you do, and for giving me the chance to share my passion and vision of Dancing with ED.

You can see the original post on the BTCF site here.

2 views0 comments

Recent Posts

See All


bottom of page